Hello All,
Great news :) Nick is coming home for a few days before they start his next round of Chemo
Blog later xxx
Monday, 11 January 2010
Sunday, 10 January 2010
A message from Nick - Part 2
Hi Folks,
Here is a quick message from Nick he is feeling tons better and his superhuman blood count is up from 1.1 yesterday to 9.5 today. We are not sure how he is doing it but it is great news and he is no longer neutropenic and is out of isolation :) He has also managed to stay awake all day for the first time in weeks and was just settling down to bed as I left him.
He has also managed to eat some beans and bacon for breakfast and some roast beef and mash for lunch.
I am so very happy happy happy.
Here is a quick message from Nick he is feeling tons better and his superhuman blood count is up from 1.1 yesterday to 9.5 today. We are not sure how he is doing it but it is great news and he is no longer neutropenic and is out of isolation :) He has also managed to stay awake all day for the first time in weeks and was just settling down to bed as I left him.
He has also managed to eat some beans and bacon for breakfast and some roast beef and mash for lunch.
I am so very happy happy happy.
Saturday, 9 January 2010
What a difference a day makes :)
Hello All, it's me again.... :)
I have visited Nick this afternoon and I could tell from his voice this morning on the telephone that he was feeling much better within himself...his count has increase overnight from 0.1 to 1.1 which apparently is extremely good :) and the doctor even stopped me on the corridor to say my husband has super human blood and that they have never seen all of someones blood counts increase to such a high level in such a short time....but then again I always knew I had married someone special all those years ago ;) and he has put 5lb on from the stone he lost so the 'build up' shakes that he is on are working :)
Although he is still in isolation for now he managed to walk down to the ward (about 25 yards) to say HI to the friends he had made in there before he was put into isolation which really helped cheer him up :)
By the time I got there he was sleepy and had a good nap for about an hour then we had a visit from Uncle Barry, Aunty Angela and Emma - thank you for calling in XXX
Whilst blogging I would also like to thank Graham (our neighbour) who stepped in to visit for me yesterday at such short notice. Graham - I have told him you called for a pint on your way home and it put a huge smile on his face :)
Crikey I do not think I have put so many smiles on one blog but today it is worth it and I am sat here typing this with a very big smile on my face so very very proud of my husband. I love you honey xxx
We are just waiting now to speak to his chemo doctor to see what they are going to do next week - he was due to start his next round of chemo on Monday but we are not sure if they are going to give him a break to fully recover from the infection he has had which means they will hopefully let him come home for a few days and then let him go back in for the next round or they will may be push straight ahead as planned but with no break - we shall see! :)
Right I am off for my tea.
Bye :) :) :)
I have visited Nick this afternoon and I could tell from his voice this morning on the telephone that he was feeling much better within himself...his count has increase overnight from 0.1 to 1.1 which apparently is extremely good :) and the doctor even stopped me on the corridor to say my husband has super human blood and that they have never seen all of someones blood counts increase to such a high level in such a short time....but then again I always knew I had married someone special all those years ago ;) and he has put 5lb on from the stone he lost so the 'build up' shakes that he is on are working :)
Although he is still in isolation for now he managed to walk down to the ward (about 25 yards) to say HI to the friends he had made in there before he was put into isolation which really helped cheer him up :)
By the time I got there he was sleepy and had a good nap for about an hour then we had a visit from Uncle Barry, Aunty Angela and Emma - thank you for calling in XXX
Whilst blogging I would also like to thank Graham (our neighbour) who stepped in to visit for me yesterday at such short notice. Graham - I have told him you called for a pint on your way home and it put a huge smile on his face :)
Crikey I do not think I have put so many smiles on one blog but today it is worth it and I am sat here typing this with a very big smile on my face so very very proud of my husband. I love you honey xxx
We are just waiting now to speak to his chemo doctor to see what they are going to do next week - he was due to start his next round of chemo on Monday but we are not sure if they are going to give him a break to fully recover from the infection he has had which means they will hopefully let him come home for a few days and then let him go back in for the next round or they will may be push straight ahead as planned but with no break - we shall see! :)
Right I am off for my tea.
Bye :) :) :)
Thursday, 7 January 2010
Struggling to get on top of things...
Hello folks
I have not blogged for a few days due to being very busy with extra trips to the hospital to see Nick as it is very hard to talk to him on the telephone with his mouth been as sore as it is.
He has had a rough couple of days and has not had much energy at all compared to my last blog when he was doing really well and hoping to come home for the weekend....right now he will be staying in but we take one day at a time and hope upon hope that I see some sign of improvement even if it's just a little bit of hope that I can cling onto. Today he is suffering a lot from headaches and he had a very disturbed night and is very agitated within himself....
I will blog later.....
I have not blogged for a few days due to being very busy with extra trips to the hospital to see Nick as it is very hard to talk to him on the telephone with his mouth been as sore as it is.
He has had a rough couple of days and has not had much energy at all compared to my last blog when he was doing really well and hoping to come home for the weekend....right now he will be staying in but we take one day at a time and hope upon hope that I see some sign of improvement even if it's just a little bit of hope that I can cling onto. Today he is suffering a lot from headaches and he had a very disturbed night and is very agitated within himself....
I will blog later.....
Tuesday, 5 January 2010
A very snowy day
Hello all,
I've just got back from the hospital OUCH...my legs hurt from having to walk there in the snow but nothing compare to what my lovely hubby is going through so no more moaning from me ok maybe just one more little one OUCH!
He is much improved today and the doctors have received his blood culture results back and they now know what bug/infection they need to treat and have changed his antibiotics accordingly.
Some good news...if he keeps responding and improving well they are hoping to let him home for a few days at the weekend before they want him back in to start his next course of chemo. :-)
On that happy note I am off to have my evening meal then bed to watch the snow fall some more with my emergency hippo which gives out lots of cuddles that I received from Joanna my lovely friend.
Night Night all x
I've just got back from the hospital OUCH...my legs hurt from having to walk there in the snow but nothing compare to what my lovely hubby is going through so no more moaning from me ok maybe just one more little one OUCH!
He is much improved today and the doctors have received his blood culture results back and they now know what bug/infection they need to treat and have changed his antibiotics accordingly.
Some good news...if he keeps responding and improving well they are hoping to let him home for a few days at the weekend before they want him back in to start his next course of chemo. :-)
On that happy note I am off to have my evening meal then bed to watch the snow fall some more with my emergency hippo which gives out lots of cuddles that I received from Joanna my lovely friend.
Night Night all x
Monday, 4 January 2010
Short message from Nick
Hi there,
Nick wanted to say a short message to you all on our new camera but I had to stop it early as he was finding it to difficult to talk but here is what he managed and as soon as he is better I will post another one up.
WARNING: It is distressing to see him like this he is not the Nick we all know and love but he will be back he just needs a little time to get over this infection that he has picked up and then he can get back on track with beating this tumor to a pulp. He had a very high temperature all day yesterday and is on two lots on antibiotics he is due his spinal chemo at 11.00 a.m. today.
Take care, will try and blog later.
Lynn x
Nick wanted to say a short message to you all on our new camera but I had to stop it early as he was finding it to difficult to talk but here is what he managed and as soon as he is better I will post another one up.
WARNING: It is distressing to see him like this he is not the Nick we all know and love but he will be back he just needs a little time to get over this infection that he has picked up and then he can get back on track with beating this tumor to a pulp. He had a very high temperature all day yesterday and is on two lots on antibiotics he is due his spinal chemo at 11.00 a.m. today.
Take care, will try and blog later.
Lynn x
Sunday, 3 January 2010
Hi Guys
I was wondering if anyone would like to send Nick a message as he is very low at the moment to help cheer him up it does not have to be Get Wells...but any short messages or jokes that I can collate and read to him :)
Nick has been moved into a cubical today as he has a soring temperature and they have just started giving him two different antibiotics to try and help him pull through this infection he has. We are not sure what the infection is yet as the blood cultures have only just been sent off today.
Thanks
Lynn x
I was wondering if anyone would like to send Nick a message as he is very low at the moment to help cheer him up it does not have to be Get Wells...but any short messages or jokes that I can collate and read to him :)
Nick has been moved into a cubical today as he has a soring temperature and they have just started giving him two different antibiotics to try and help him pull through this infection he has. We are not sure what the infection is yet as the blood cultures have only just been sent off today.
Thanks
Lynn x
Saturday, 2 January 2010
A very poorly hubby :(
Hello All,
The lovely Hey's came to visit today from Harrogate (it was great to see you guys and have that long awaited cuddle from Joanna) while they were here they looked after the boys for me while I visited Nick and took him an up to date photograph of Oscar and Isaac.
He is extremely poorly today....the nurses called a doctor out to see him at about 3.30 ish this morning...his 23 hr chemo that he had has caused him to have mouth, throat and gullet ulcers so he is now on two different mouth washes, a throat spray and a morphine based painkiller every hour as well as his anti-sickness injections. At the moment he is unable to eat even though he keeps trying....I took him some cartons of fruit today but he only managed about 4 small peach slices, I have never seen a throat so raw :(
Tonight they will also be starting injections into his stomach to help raise his immune system.
He is very very weak and has been drifting in and out of sleep most of the day. The nurses are missing his drawings today that he leaves on his pee bottles for them (they need to measure all that goes in and comes out) but hopefully very soon in the near future he will be able to put a smile back on there faces.
That's about it for today folks I am off to get myself something to eat as it's been none stop since breakfast!
But before I go I would like to thank Steve, Joanna and Ellie for the thoughtful gift that they have given us today....it's a digital camera so that I can film a message from the boys and take it to Nick so he can see it and then send one back to them when he is well enough to talk.
A VERY BIG THANK YOU to you from US ALL. XXXX
The lovely Hey's came to visit today from Harrogate (it was great to see you guys and have that long awaited cuddle from Joanna) while they were here they looked after the boys for me while I visited Nick and took him an up to date photograph of Oscar and Isaac.
He is extremely poorly today....the nurses called a doctor out to see him at about 3.30 ish this morning...his 23 hr chemo that he had has caused him to have mouth, throat and gullet ulcers so he is now on two different mouth washes, a throat spray and a morphine based painkiller every hour as well as his anti-sickness injections. At the moment he is unable to eat even though he keeps trying....I took him some cartons of fruit today but he only managed about 4 small peach slices, I have never seen a throat so raw :(
Tonight they will also be starting injections into his stomach to help raise his immune system.
He is very very weak and has been drifting in and out of sleep most of the day. The nurses are missing his drawings today that he leaves on his pee bottles for them (they need to measure all that goes in and comes out) but hopefully very soon in the near future he will be able to put a smile back on there faces.
That's about it for today folks I am off to get myself something to eat as it's been none stop since breakfast!
But before I go I would like to thank Steve, Joanna and Ellie for the thoughtful gift that they have given us today....it's a digital camera so that I can film a message from the boys and take it to Nick so he can see it and then send one back to them when he is well enough to talk.
A VERY BIG THANK YOU to you from US ALL. XXXX
Taking it's toll
Hello All,
I had an unplanned visit yesterday evening to see Nick he was not well....there are one or two infections starting to show even though he is in isolation i.e. urine infection and a really bad sore throat so as I left last night he was waiting for a doctor to come and see him.
It was the hardest visit yet for me last night, he was very weak and sleepy and could not hold much of a conversation and I must admit it really pulled on my heart strings to see him like that. He has coped so well with his treatment up until now (even to doctors and nurses keep commenting on how well he is dealing with the treatment) and now is the time that it all seams to have caught up with him.
I had a very restless night I am just hoping that Nick managed to get some rest I know that he was having his cocktail of IV drugs to see him through the night.
He is now also requiring more drugs every 6 hrs 24 hrs a day which counteracts the 23 hr IV that he had the other day and he is down for that until the 8th January or until his count recovers sufficiently enough.
We also got the results from the Liver scan eventually....after they have been chasing it up for over a week! All is well in that organ :) it is a group of blood vessels that have clumped together called a hemogoma and nothing to worry about.
A very big THANK YOU to Uncle Alan & Grace for sitting with the boys at such short notice yesterday and I am looking forward to seeing Joanna, Steve and Eleanor later today :)
That's all for now folks....I'll update the blog later once I have seen Nick today.
I had an unplanned visit yesterday evening to see Nick he was not well....there are one or two infections starting to show even though he is in isolation i.e. urine infection and a really bad sore throat so as I left last night he was waiting for a doctor to come and see him.
It was the hardest visit yet for me last night, he was very weak and sleepy and could not hold much of a conversation and I must admit it really pulled on my heart strings to see him like that. He has coped so well with his treatment up until now (even to doctors and nurses keep commenting on how well he is dealing with the treatment) and now is the time that it all seams to have caught up with him.
I had a very restless night I am just hoping that Nick managed to get some rest I know that he was having his cocktail of IV drugs to see him through the night.
He is now also requiring more drugs every 6 hrs 24 hrs a day which counteracts the 23 hr IV that he had the other day and he is down for that until the 8th January or until his count recovers sufficiently enough.
We also got the results from the Liver scan eventually....after they have been chasing it up for over a week! All is well in that organ :) it is a group of blood vessels that have clumped together called a hemogoma and nothing to worry about.
A very big THANK YOU to Uncle Alan & Grace for sitting with the boys at such short notice yesterday and I am looking forward to seeing Joanna, Steve and Eleanor later today :)
That's all for now folks....I'll update the blog later once I have seen Nick today.
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