A Happy New Year

Hello All,

Nick, I and the boys would like to wish you all a very Happy New Year, please raise a glass and have a drink for Nick as he is on strictly no alchol...shame :(

I have visited Nick today and he is doing great his 23 hour IV that was due to finish at 10.30 this morning did not finish until 12.30 because Nick kept forgetting to plug the machine back in when he visited the little mans room during the night due to the cocktail of drugs he was having to stop the sickness and help him sleep....eventually the machine bleeped at him and then he woke back up and plugged it in, LOL....

So no Chemo this afternoon but he is back on with a heavy set of Chemo again tomorrow.

He did ask me so send this message out to everyone, so here goes:

"To all my family and friends, I just wanted to wish you all a very Happy New Year, 2009 has not been a good one for so many people so here is to 2010 and a year full of fun, happiness and laughter"

Take care all, be safe and well.

Lynn & Nick xxx

Isolation/Restricted Visiting

Hello All

I would just like to thank friends and family for taking time out to visit Nick and helping out with food parcels for him (he really is not enjoying the hospital food) I think I treated him to well with my home cooking :)

I have just spoken to Nick and the Hospital have restricted any more visits for now and Nick is going into isolation as his blood count is 0.5 and he is open to infection big time...

The Hospital are going to give him something this evening which will hopefully bring his blood count back up to a reasonable level because until that happens they cannot proceed with the chemo that is needed tomorrow.

I will be back on with a calendar for visiting as soon as Nick is able to start receiving visitors and food from the outside world again.

Thanks
Lynn x

Some Good News..... :-)

Hi All,

Nick was given some good news last night but I could not get onto the Blog to update it so here it is.

From what they can see under the microscope they do not think anything has reached his Central Nervous System (CNS) yet but they will still need to monitor him for it.

Nick stayed in Hospital yesterday rather than coming home after his chemo with him not being well, the really painful headaches are coming from the chemo which is being done by lumber puncture so they are going to monitor Nick until Day 15 when his next one should be due and decide then if they are going/need to continue with the lumber puncture treatment or just give him his chemo through his central line.

So a happy evening was had by both of us even though we were apart and we have a good day to come hopefully today. I will be taking Oscar and Isaac up to see him later. Please keep praying and sending us your positive thoughts we still have a long way to go and some nasty treatment to come starting with a 23 hr IV chemo on Wednesday which can send him a little mad/weird but we already know that Nick is like that so to be honest I am not expecting much change there ;)

Love to you all, speak soon.
xxx

Time for more chemo....

Hello all,

Nick, I and the boys have had a nice few days since Nick made it home Christmas day afternoon but unfortunately Nick has not managed to be downstairs much as he is suffering from really painful headaches and needs to be laid flat so that the pain is not as bad.

Oscar and Isaac have really enjoyed being able to pop upstairs and see him just for 5/10 minutes at at a time and also give him there goodnight kisses before they go to bed.

Once the boys are in bed then it been time for Nick and I to catch up on conversations that we have not managed to have and make decisions that need to be made in the future which has been nice as well as upsetting at times.

But.....it has been nice to roll over in bed and know that he is there :)

Nick was due back into hospital this morning for more Chemo but unfortunately he is back in bed....he did try to get up so I could take him to the hospital but the pain in his head was so bad that he only made it as far as the settee.

I am waiting for a call from the hospital as they are juggling beds around as I type this blog so that he has a bed to go to so that they can give him his chemo lying down and also see a doctor, hopefully it will be sometime later this afternoon.

Our very dear friend Rob is travelling down to see us from Harrogate and I am hoping that that will lift Nick's spirits a little before I have to take him up to the hospital later today.

I will post another blog later.

Take call all xxx

Christmas Day at the Hospital

Hello All,

Sorry for the late blog but I have been enjoying some time with the boys in my life :)

Me and the boys spent the morning up at the hospital with Nick, the boys have really missed him and did not want to leave his side for very long.

Nick made it home about 2 o'clock this afternoon and is due back in for more chemo on Monday. He woke up this morning like a new person after the cocktail of drugs they gave him last night in fact he did not even know that they had been in to do his obs at 2 a.m. he was that far gone and on a couple of occasions the nurses came in with a torch to check that he was still breathing they had not seen him so settled so now that they know that that mixture works he can have it again the next time he is in. It is reassuring to know that they have managed to find a mixture of medicines that work for him :)

I am going to go now and have my cuddles that I did not manage to get yesterday.

Bye x

:( Nick has to stay in Hospital

Just a quick blog following on from my earlier one.... Nick developed a really bad headache and sickness after he phoned me to say he was coming home so he will now stay in Hospital.

Talk later x

YIPPEE, YIPPEE, YIPPEE......

Hello Folks,

Firstly, Merry Christmas to you all :)

Secondly, I've just had a call from Nick the Hospital are letting him home overnight :) (I cannot stop smiling) he will be back in tomorrow for more chemo but at least he will be home for a few hours. I can tell you now my Christmas Eve is going to be full of cuddles :)

And finally, I will blog later I am to excited to write anymore.....
Byeeeeee x

Evening Update on Snowy Wednesday

Hello All,

I have spoken to Nick this afternoon and he is much better the Doctors seam to be controlling his sickness with regular injections so that his chemotherapy can continue on track even though the injections have are not stopping the sickness totally. His body hair is starting to drop out a lot faster than previously.

Nick has had another spinal Chemotherapy today and said it was a lot different to the first one he had....this one for some reason was a lot more uncomfortable and he could feel everything they were doing today :(

I am feeling much better today and I am hoping to take the Boys to see Nick tomorrow so long as he is feeling up to it and that there are no major changes overnight with Nick or the boys coming down with anything else!

I cannot wait to see Nick it feels like it has been a week not just a few days....but then when you have been together for over 18 years and then all of a sudden your sole mate is not at your side anymore it takes a lot of getting used to.

In the meantime I am going to go and pamper myself with a beautiful gift hamper that I have received today from a very close friend called Joanna - I would just like to say a big Thank You to you for being there and helping me out so much with Oscar picking him up from Pre-School and being there for me when I needed your help and friendship most - words cannot express just how much you mean to me, I am glad our paths crossed when they did Joanna. x

That's all for now, more tomorrow :)

Morning update

Hello Folks

I have just spoken with Nick for an update with me not been able to visit today :( The sickness from all the chemo started yesterday evening and has continued...he had no tea last night because of it and no breakfast this morning either. They cannot start today's chemo until the sickness is under control as he is there all day they are not worried about what time he has it today.

This is the start of a very rough time and by gosh we will make the most of the good days as and when he has them.

Bye for now.

First Day complete

Hi All,

Nick started the day yesterday with chemotherapy through his central line early in the morning then at lunch time he was sent down for his lumber puncture and spinal chemo. When I saw him he was having to lay still for 4 hours after the spinal injection. It looks like we are not going to get any results from this for a few days as they need to culture the cells etc which I believe takes about 48 hrs which will take us up to Christmas Eve so Nick and I are hoping for the best Christmas present ever the words "all clear".

He was very cold and tired and it felt very odd to see him just laid there :( He had missed out on his lunch which he was not happy about but knowing Nick I am sure he will have made up for it when evening meal came around so long as the nausia had not set in!

The boys are really missing Nick already and it started with Isaac standing at the safety gate at the bottom of the stairs shouting DADDY, DADDY, DADDY thinking he was upstairs in bed - now that really tugged on my heart strings! Oscar knows where daddy is but he was very clingy to me yesterday and kept asking if Daddy was coming home from hospital yet.

I am not well at the moment so I am not sure when I will get around to blogging again it may be a couple of days... I have pick up the cold, high temperature and sore throat that Oscar and Isaac have had which has been keeping them both awake for the past week. I am more upset that I cannot visit Nick and be there for him but I know that staying away from him is in his best interest and in the meantime I am blasting this thing with Lemsip and medication 4 hourly so that I can get to see Nick again as soon as possible.

Stay strong for us our dear friends and family, speak to you all again very soon. x