Hi All,
Not much sleep was had by either of us last night Nick had a really bad headache and they are becoming more and more frequent so we are seeing our doctor this afternoon for some stronger painkillers, if/should he decide he does not want to prescribe them then we will need to visit the hospital and they will sort some out of us so fingers crossed for ease all around the doctor will give us what we need.
We are still waiting to hear from Jessops Children's Hospital today about our visit tomorrow so they have until mid afternoon to phone or I will be hounding them for our appointment time :)
Monday 30 November 2009
Sunday 29 November 2009
Email us at EYUPSUNSHINE
Morning everyone.
Just to let you know you can now email us at EYUPSUNSHINE. If you click on the family photo on the right then it will take you to a profile page where there is a email link. Just click that and you should be able to email us.
If it doesn't work then here is our email for this site:
eyupsunshine@googlemail.com
Thanks,
Nick x
Just to let you know you can now email us at EYUPSUNSHINE. If you click on the family photo on the right then it will take you to a profile page where there is a email link. Just click that and you should be able to email us.
If it doesn't work then here is our email for this site:
eyupsunshine@googlemail.com
Thanks,
Nick x
Saturday 28 November 2009
From normality to cancer in 20 days.
Hi Folks,
It's me again :) many people keep asking how all this started so I thought I would detail the appointments that we attended up to when we received the results of Nick's biopsy.
06/11/09
We saw our doctor at 8.30 and he was not happy with Nick's eye so he sent him away and said he would phone us as soon as possible with a time to visit the Ophthalmics department at Rotherham Hospital, we received a phone call at 9:15 saying we were booked in to see someone at 10:00 the same day.
By 12:30 Nick had been seen by 3 consultants and we left the hospital waiting for an appointment for an urgent MRI scan.
12/11/09
Nick arrived for his MRI scan - typically he was in there ages! and after about an hour he came out and told me that he had been through the scanner twice and now he needed to go for a CT scan as well which was also done the same day.
13/11/09
Sscan result day - and we were advised that there was a mass which is causing the eye problem and blindness that Nick is experiencing and they were pretty sure it was just a build up of mucus and puss but they could not be sure without a biopsy so we were referred to the Ear, Nose & Throat department under Mr Harkness for this to happen.
17/11/09
Was our first meeting with Mr Harkness who took a look at the scans with Nick then a young girl was called in with his operating diary and he turned to the following day and said cancel that that and that and move this one and put Mr Dent in there so we left knowing that Nick was going into hospital at 7:00 a.m the following day under general anesthetic for a sinus flush and biopsy.
18/11/09
Me and the boys dropped Nick off at the hospital bright and early, I called to pick him up and a large bag of tablets at about 6.30 pm. Oscar stayed up to see daddy come home but then he would not leave his side and we eventually managed to get Oscar to close his eyes on the settee at 8:45 pm. Nick knew when he left hospital that he may possibly need some radio therapy treatment depending on what the biopsy came back with.
24/11/09
We returned to Rotherham Hospital to see Mr Harkness and the new was delivered that it was no longer just a mass but a tumor which would require chemotherapy asap for at least 6 months. We left the hospital that day waiting for an appointment to see the Hematology Department.
26/11/09
We arrived at the Hematology department and after speaking with numerous people and Nick having more scans and bloods tests we came home pumped with information all about his type of cancer and what is to follow.
That is our journey to date and how we arrived where we are today.
Next week is a busy week with various hospital visits:
01/12/09 We will hopefully be visiting Jessops Children's Hospital to deposit the future Dent population.
02/12/09 Nick will be going into hospital for them to take a sample of his Bone Marrow.
03/12/09 Nick's Chemotherapy will start.
It's me again :) many people keep asking how all this started so I thought I would detail the appointments that we attended up to when we received the results of Nick's biopsy.
06/11/09
We saw our doctor at 8.30 and he was not happy with Nick's eye so he sent him away and said he would phone us as soon as possible with a time to visit the Ophthalmics department at Rotherham Hospital, we received a phone call at 9:15 saying we were booked in to see someone at 10:00 the same day.
By 12:30 Nick had been seen by 3 consultants and we left the hospital waiting for an appointment for an urgent MRI scan.
12/11/09
Nick arrived for his MRI scan - typically he was in there ages! and after about an hour he came out and told me that he had been through the scanner twice and now he needed to go for a CT scan as well which was also done the same day.
13/11/09
Sscan result day - and we were advised that there was a mass which is causing the eye problem and blindness that Nick is experiencing and they were pretty sure it was just a build up of mucus and puss but they could not be sure without a biopsy so we were referred to the Ear, Nose & Throat department under Mr Harkness for this to happen.
17/11/09
Was our first meeting with Mr Harkness who took a look at the scans with Nick then a young girl was called in with his operating diary and he turned to the following day and said cancel that that and that and move this one and put Mr Dent in there so we left knowing that Nick was going into hospital at 7:00 a.m the following day under general anesthetic for a sinus flush and biopsy.
18/11/09
Me and the boys dropped Nick off at the hospital bright and early, I called to pick him up and a large bag of tablets at about 6.30 pm. Oscar stayed up to see daddy come home but then he would not leave his side and we eventually managed to get Oscar to close his eyes on the settee at 8:45 pm. Nick knew when he left hospital that he may possibly need some radio therapy treatment depending on what the biopsy came back with.
24/11/09
We returned to Rotherham Hospital to see Mr Harkness and the new was delivered that it was no longer just a mass but a tumor which would require chemotherapy asap for at least 6 months. We left the hospital that day waiting for an appointment to see the Hematology Department.
26/11/09
We arrived at the Hematology department and after speaking with numerous people and Nick having more scans and bloods tests we came home pumped with information all about his type of cancer and what is to follow.
That is our journey to date and how we arrived where we are today.
Next week is a busy week with various hospital visits:
01/12/09 We will hopefully be visiting Jessops Children's Hospital to deposit the future Dent population.
02/12/09 Nick will be going into hospital for them to take a sample of his Bone Marrow.
03/12/09 Nick's Chemotherapy will start.
Nick's Tumor
Hi All,For those of you who have not seen Nick for a while this is how the tumor is affecting his right eye (I bet you thought he was winking at you?)
The beard is longer than normal due to him not being able to shave because of the soreness of his face....it is soon to be gone hopefully this evening once he has taken all of his painkillers ;)
Friday 27 November 2009
Latest Hospital visit
Yesterday Nick and I went to the Hospital to meet with the Hematology people and also to talk through what the process would be for his treatment.
Whilst we were in a meeting with 5 other doctors/consultants the Bone Marrow doctor fell asleep which was really really funny! Yet not a great advert for the guy who is going to be trying to take bone marrow from Nick.
It turns out ALL the treatment will take place in Rotherham - the only reason Nick will need to travel to Sheffield is if he requires Radio Therapy... and that would be after the Chemotherapy has ended and if it had not cleared it up.
Nick's treatment will take place every 3 weeks in Rotherham Hospital and administered through an IV and at the end of the day he will be given a course of Chemotherapy tablets for 5 days. After the 5 days will be when the fun and games start, and Nick's blood counts will go up down and round and round and that's when the symptoms will start to kick in.
Nick also got weighed and measured so they could get the correct amount of drugs mixed on the day on the first course of Chemo.
Nick also had to have 7 tubes of blood taken - I'm surprised he's got any left in him ;)
He also had to have a full body CT scan - which before hand he had to drink about 2 pints of thick white gloopy stuff and also have some dye injected in to him.
It was a hectic day - we got to the hospital at 10:15am and got home about 5:30pm. Still - with all the waiting around I managed to get started on the Christmas Cards ;)
All the staff we have dealt with so far have been BRILLIANT! Long may it continue.
Speak soon
Love Lynn-Marie x x x
Whilst we were in a meeting with 5 other doctors/consultants the Bone Marrow doctor fell asleep which was really really funny! Yet not a great advert for the guy who is going to be trying to take bone marrow from Nick.
It turns out ALL the treatment will take place in Rotherham - the only reason Nick will need to travel to Sheffield is if he requires Radio Therapy... and that would be after the Chemotherapy has ended and if it had not cleared it up.
Nick's treatment will take place every 3 weeks in Rotherham Hospital and administered through an IV and at the end of the day he will be given a course of Chemotherapy tablets for 5 days. After the 5 days will be when the fun and games start, and Nick's blood counts will go up down and round and round and that's when the symptoms will start to kick in.
Nick also got weighed and measured so they could get the correct amount of drugs mixed on the day on the first course of Chemo.
Nick also had to have 7 tubes of blood taken - I'm surprised he's got any left in him ;)
He also had to have a full body CT scan - which before hand he had to drink about 2 pints of thick white gloopy stuff and also have some dye injected in to him.
It was a hectic day - we got to the hospital at 10:15am and got home about 5:30pm. Still - with all the waiting around I managed to get started on the Christmas Cards ;)
All the staff we have dealt with so far have been BRILLIANT! Long may it continue.
Speak soon
Love Lynn-Marie x x x
WHAT TYPE OF CANCER I HAVE
Hi folks,
Well - this is the start of our Blog to keep people updated as to how things are progressing with Nick during his Chemotherapy to beat the Cancer he has.
OK - so let's start by telling you all about what type of Cancer Nick has exactly.
It's called:
AGGRESSIVE (INTERMEDIATE/HIGH-GRADE) NON-HODGKIN'S LYMPHOMA.
If it is responsive to chemotherapy (which we have been told it is), then it is potentially curable.
So - fingers crossed that both the tumor and Nick respond well and then come May we can get back to some normality ;)
Now to keep this blog updated with how Nick is feeling and how he gets on with his appointments.
I'm sure Nick will jump on here at some point and let his feelings been known to you all ;)
Catch you all later,
Love Lynn-Marie x x
(Lynn-Marie is what Nick calls me most of the time)
Well - this is the start of our Blog to keep people updated as to how things are progressing with Nick during his Chemotherapy to beat the Cancer he has.
OK - so let's start by telling you all about what type of Cancer Nick has exactly.
It's called:
AGGRESSIVE (INTERMEDIATE/HIGH-GRADE) NON-HODGKIN'S LYMPHOMA.
If it is responsive to chemotherapy (which we have been told it is), then it is potentially curable.
So - fingers crossed that both the tumor and Nick respond well and then come May we can get back to some normality ;)
Now to keep this blog updated with how Nick is feeling and how he gets on with his appointments.
I'm sure Nick will jump on here at some point and let his feelings been known to you all ;)
Catch you all later,
Love Lynn-Marie x x
(Lynn-Marie is what Nick calls me most of the time)
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