Hello All
I saw Nick yesterday and he had a tough morning after he had had his platelet transfusion he took a reaction to the donors platelet and started to fit...he was checked out by a doctor shortly after this happened and all is well it was just very terrifying for him to go through at the time. If he needs more platelets whilst he is undergoing all this treatment they will just watch him closely as he may not react like this every time due to the platelets coming from a different donor each time but if it does happen again then they will have to give him an injection before any more is given.
He also had his blood transfusion and that went well, his counts are starting to rise so hopefully visiting duties can resume shortly :)
xx
Sunday 31 January 2010
Saturday 30 January 2010
An up and down week....
Hello Folks
Sorry for no blog for a few days but our youngest son had other ideas by the time I got home from the hospital I have spent most nights cleaning the carpets from his sickness that he has this week...the joys of teething :(
Nick has had a tough week after his blood transfusion on Tuesday he went neutrophenic and by Thursday he had a very high temperature from an infection so he was started on antibiotics so he will not be home for a few days this week like we hoped for :(
He will be having another blood transfusion today as well as some platlets (these are normal cells found in our blood which aid in blood clotting) he has also been put on potassium tablets too so all in all a tough week and his next 16 day session of chemotherapy has been put on hold until a week on Monday instead of it starting this coming Monday.
I will hopefully blog later...
See you later folks :)
Sorry for no blog for a few days but our youngest son had other ideas by the time I got home from the hospital I have spent most nights cleaning the carpets from his sickness that he has this week...the joys of teething :(
Nick has had a tough week after his blood transfusion on Tuesday he went neutrophenic and by Thursday he had a very high temperature from an infection so he was started on antibiotics so he will not be home for a few days this week like we hoped for :(
He will be having another blood transfusion today as well as some platlets (these are normal cells found in our blood which aid in blood clotting) he has also been put on potassium tablets too so all in all a tough week and his next 16 day session of chemotherapy has been put on hold until a week on Monday instead of it starting this coming Monday.
I will hopefully blog later...
See you later folks :)
Tuesday 26 January 2010
Doing OK
Hello All,
I have been to see Nick and walked in to him hooked up having another blood transfusion which I thought might be happening in a couple of days but not today so that was a surprise!
He is doing OK within himself and we are getting through each day one day at a time and not really making any plans too far ahead as things change so fast with him.
I took Oscar and Isaac to see him this afternoon for 20 mins which he really enjoyed once I had picked them up from day nursery then we went to pick Gran up for a sleepover which Oscar was really excited about but I bet he does not sleep in any longer tomorrow!
I will be seeing Nick tomorrow and will blog later
Bye x
I have been to see Nick and walked in to him hooked up having another blood transfusion which I thought might be happening in a couple of days but not today so that was a surprise!
He is doing OK within himself and we are getting through each day one day at a time and not really making any plans too far ahead as things change so fast with him.
I took Oscar and Isaac to see him this afternoon for 20 mins which he really enjoyed once I had picked them up from day nursery then we went to pick Gran up for a sleepover which Oscar was really excited about but I bet he does not sleep in any longer tomorrow!
I will be seeing Nick tomorrow and will blog later
Bye x
Monday 25 January 2010
Sunday - not a good day
Hello All
Nick has gone down hill really fast this time around and the sickness he is suffering is really bad bless him, he is not even able to keep water down this time around :( and I had to cancel all visitors that were booked into see him yesterday.
The anti-sickness drugs are not working at all so we shall see what the doctors suggest later today when they do the ward round as he has lost even more weight.
Nick was very low yesterday but from my point of view I had a better idea of how to deal with it this time around and I was more prepared for how he looked too so although it was hard to see him not well I was not as upset as I know he will pull through it.
I will blog later as I am going to be doing two visits a day this week with him being so low.
Speak later x
Nick has gone down hill really fast this time around and the sickness he is suffering is really bad bless him, he is not even able to keep water down this time around :( and I had to cancel all visitors that were booked into see him yesterday.
The anti-sickness drugs are not working at all so we shall see what the doctors suggest later today when they do the ward round as he has lost even more weight.
Nick was very low yesterday but from my point of view I had a better idea of how to deal with it this time around and I was more prepared for how he looked too so although it was hard to see him not well I was not as upset as I know he will pull through it.
I will blog later as I am going to be doing two visits a day this week with him being so low.
Speak later x
Saturday 23 January 2010
Round 2 Chemo complete
Hi folks,
Nick has now finished his 2nd round of chemo :) he is doing really well apart from the sickness with this set of drugs and the Blood Transfusion that he had is still making him look really peachy it's nice to see some colour in his face :)
I am hoping to take the boys to see Nick this afternoon as they have not seen him in a week and hopefully make it to the hospital restaurant as a family if Nick's headaches have not returned which would be really nice to eat a meal all together :) before his cell count drops within the next few days.
That's all for now I had better go and feed the boys before they eat me :)
Bye x
Nick has now finished his 2nd round of chemo :) he is doing really well apart from the sickness with this set of drugs and the Blood Transfusion that he had is still making him look really peachy it's nice to see some colour in his face :)
I am hoping to take the boys to see Nick this afternoon as they have not seen him in a week and hopefully make it to the hospital restaurant as a family if Nick's headaches have not returned which would be really nice to eat a meal all together :) before his cell count drops within the next few days.
That's all for now I had better go and feed the boys before they eat me :)
Bye x
Tuesday 19 January 2010
Chemo Round 2
Hi All,
Nick recovered well enough on Sunday for them to start his next round of chemo yesterday, it was been pumped into him most of the day taking in 11 bags of different drugs and he has had the same today :( so as you can guess he is pretty much out of it tonight, very flat and tired but that has not been helped with his hemoglobin levels dropping very quickly so he is having a blood transfusion over night once his chemotherapy for today has finished which will be around 11.30 tonight.
He has lost the weight he put on too so the build up meal shakes are back on the menu when he wants them and the Physio is also going to come and see him to help keep his leg muscles built up as he has hardly been out of bed since starting all of this in December.
These set of drugs can change his personality so they are keeping a very close eye on him but the good news is that it will only be temporary as of yet I can see no change myself...
Nick will be having three more days of chemo the next two days will be a little lighter than the last two and he will have his intrathecal chemo into his spine on Friday. I will keep you all post after my visits.
Nick recovered well enough on Sunday for them to start his next round of chemo yesterday, it was been pumped into him most of the day taking in 11 bags of different drugs and he has had the same today :( so as you can guess he is pretty much out of it tonight, very flat and tired but that has not been helped with his hemoglobin levels dropping very quickly so he is having a blood transfusion over night once his chemotherapy for today has finished which will be around 11.30 tonight.
He has lost the weight he put on too so the build up meal shakes are back on the menu when he wants them and the Physio is also going to come and see him to help keep his leg muscles built up as he has hardly been out of bed since starting all of this in December.
These set of drugs can change his personality so they are keeping a very close eye on him but the good news is that it will only be temporary as of yet I can see no change myself...
Nick will be having three more days of chemo the next two days will be a little lighter than the last two and he will have his intrathecal chemo into his spine on Friday. I will keep you all post after my visits.
Sunday 17 January 2010
Saturday 16th January 2010
Hello All,
Yesterday was the first day I have ventured out for any length of time since Nick has been home...I just knew in the morning that I should not have done it! Nick had had a really unsettle night with his smell senses working overtime and even the smell of drinking water was driving him to annoyance :-/
When I got back I checked in on him and he was very pale and could hardly open his eyes so I phoned the hospital and they said to bring him straight in so I took him in yesterday afternoon, once again a VERY BIG THANK YOU to Terry and June my neighbours for stepping in to look after the boys at such short notice and to my sister and niece Natasha for coming down in the evening to sit with the boys once they were in bed.
When we got to the hospital they took some bloods and did his obs and they were all over the place and they immediately did an ECG which showed he was tachycardic - luckily a bed was becoming available as someone was being moved to another ward so Nick got a bed straight away. By the time I can away he had a little more colour and was more settled than he had been all day. One of his Chemo doctors is doing the ward round today so they will discuss all his obs with him then.
I will let you know more as and when I know but what I can say with a huge smile on my face is that it was brilliant to have Nick home for a short while even though 99.8% of his time was spent in bed.
Yesterday was the first day I have ventured out for any length of time since Nick has been home...I just knew in the morning that I should not have done it! Nick had had a really unsettle night with his smell senses working overtime and even the smell of drinking water was driving him to annoyance :-/
When I got back I checked in on him and he was very pale and could hardly open his eyes so I phoned the hospital and they said to bring him straight in so I took him in yesterday afternoon, once again a VERY BIG THANK YOU to Terry and June my neighbours for stepping in to look after the boys at such short notice and to my sister and niece Natasha for coming down in the evening to sit with the boys once they were in bed.
When we got to the hospital they took some bloods and did his obs and they were all over the place and they immediately did an ECG which showed he was tachycardic - luckily a bed was becoming available as someone was being moved to another ward so Nick got a bed straight away. By the time I can away he had a little more colour and was more settled than he had been all day. One of his Chemo doctors is doing the ward round today so they will discuss all his obs with him then.
I will let you know more as and when I know but what I can say with a huge smile on my face is that it was brilliant to have Nick home for a short while even though 99.8% of his time was spent in bed.
Friday 15 January 2010
Headaches Galore
Hi Folks
Nick has been home for a good few days now but unfortunately has spent all his time in bed due to his very painful headaches that he is still having.
It is so nice to wake up with him in a morning and give him a cuddle or like this afternoon I fell asleep on him whilst our wonderful neighbours Terry & June had the boys for us for a few hours - THANK YOU sooo much Terry & June :)
The chemo is definitely stopping Nick's hair growth as the last time Nick shaved was New Years Day and he has a little bit of stubble just breaking through and for someone who sometimes shaves twice a day because his hair grows so fast it seems weird but on the up side he is not in the bathroom half as long :)
I am going to go and spend some more time cuddling will update later xxx
Nick has been home for a good few days now but unfortunately has spent all his time in bed due to his very painful headaches that he is still having.
It is so nice to wake up with him in a morning and give him a cuddle or like this afternoon I fell asleep on him whilst our wonderful neighbours Terry & June had the boys for us for a few hours - THANK YOU sooo much Terry & June :)
The chemo is definitely stopping Nick's hair growth as the last time Nick shaved was New Years Day and he has a little bit of stubble just breaking through and for someone who sometimes shaves twice a day because his hair grows so fast it seems weird but on the up side he is not in the bathroom half as long :)
I am going to go and spend some more time cuddling will update later xxx
Wednesday 13 January 2010
Cuddle time :)
Hi guys,
Sorry I have not blogged for a few days but cuddle time has taken over in the Dent household :)
Nick is doing OK, he is still not able to sit/stand up for any length of time so is spending 99% of his time in bed but it is just nice to know that he is upstairs...and the only worry I have in this awful weather is to make sure he takes all his medication that they sent him home with and boy oh boy was it a big bag!
Off for more cuddles now will blog later ;)
Sorry I have not blogged for a few days but cuddle time has taken over in the Dent household :)
Nick is doing OK, he is still not able to sit/stand up for any length of time so is spending 99% of his time in bed but it is just nice to know that he is upstairs...and the only worry I have in this awful weather is to make sure he takes all his medication that they sent him home with and boy oh boy was it a big bag!
Off for more cuddles now will blog later ;)
Monday 11 January 2010
Yes...Yes...Yes :-)
Hello All,
Great news :) Nick is coming home for a few days before they start his next round of Chemo
Blog later xxx
Great news :) Nick is coming home for a few days before they start his next round of Chemo
Blog later xxx
Sunday 10 January 2010
A message from Nick - Part 2
Hi Folks,
Here is a quick message from Nick he is feeling tons better and his superhuman blood count is up from 1.1 yesterday to 9.5 today. We are not sure how he is doing it but it is great news and he is no longer neutropenic and is out of isolation :) He has also managed to stay awake all day for the first time in weeks and was just settling down to bed as I left him.
He has also managed to eat some beans and bacon for breakfast and some roast beef and mash for lunch.
I am so very happy happy happy.
Here is a quick message from Nick he is feeling tons better and his superhuman blood count is up from 1.1 yesterday to 9.5 today. We are not sure how he is doing it but it is great news and he is no longer neutropenic and is out of isolation :) He has also managed to stay awake all day for the first time in weeks and was just settling down to bed as I left him.
He has also managed to eat some beans and bacon for breakfast and some roast beef and mash for lunch.
I am so very happy happy happy.
Saturday 9 January 2010
What a difference a day makes :)
Hello All, it's me again.... :)
I have visited Nick this afternoon and I could tell from his voice this morning on the telephone that he was feeling much better within himself...his count has increase overnight from 0.1 to 1.1 which apparently is extremely good :) and the doctor even stopped me on the corridor to say my husband has super human blood and that they have never seen all of someones blood counts increase to such a high level in such a short time....but then again I always knew I had married someone special all those years ago ;) and he has put 5lb on from the stone he lost so the 'build up' shakes that he is on are working :)
Although he is still in isolation for now he managed to walk down to the ward (about 25 yards) to say HI to the friends he had made in there before he was put into isolation which really helped cheer him up :)
By the time I got there he was sleepy and had a good nap for about an hour then we had a visit from Uncle Barry, Aunty Angela and Emma - thank you for calling in XXX
Whilst blogging I would also like to thank Graham (our neighbour) who stepped in to visit for me yesterday at such short notice. Graham - I have told him you called for a pint on your way home and it put a huge smile on his face :)
Crikey I do not think I have put so many smiles on one blog but today it is worth it and I am sat here typing this with a very big smile on my face so very very proud of my husband. I love you honey xxx
We are just waiting now to speak to his chemo doctor to see what they are going to do next week - he was due to start his next round of chemo on Monday but we are not sure if they are going to give him a break to fully recover from the infection he has had which means they will hopefully let him come home for a few days and then let him go back in for the next round or they will may be push straight ahead as planned but with no break - we shall see! :)
Right I am off for my tea.
Bye :) :) :)
I have visited Nick this afternoon and I could tell from his voice this morning on the telephone that he was feeling much better within himself...his count has increase overnight from 0.1 to 1.1 which apparently is extremely good :) and the doctor even stopped me on the corridor to say my husband has super human blood and that they have never seen all of someones blood counts increase to such a high level in such a short time....but then again I always knew I had married someone special all those years ago ;) and he has put 5lb on from the stone he lost so the 'build up' shakes that he is on are working :)
Although he is still in isolation for now he managed to walk down to the ward (about 25 yards) to say HI to the friends he had made in there before he was put into isolation which really helped cheer him up :)
By the time I got there he was sleepy and had a good nap for about an hour then we had a visit from Uncle Barry, Aunty Angela and Emma - thank you for calling in XXX
Whilst blogging I would also like to thank Graham (our neighbour) who stepped in to visit for me yesterday at such short notice. Graham - I have told him you called for a pint on your way home and it put a huge smile on his face :)
Crikey I do not think I have put so many smiles on one blog but today it is worth it and I am sat here typing this with a very big smile on my face so very very proud of my husband. I love you honey xxx
We are just waiting now to speak to his chemo doctor to see what they are going to do next week - he was due to start his next round of chemo on Monday but we are not sure if they are going to give him a break to fully recover from the infection he has had which means they will hopefully let him come home for a few days and then let him go back in for the next round or they will may be push straight ahead as planned but with no break - we shall see! :)
Right I am off for my tea.
Bye :) :) :)
Thursday 7 January 2010
Struggling to get on top of things...
Hello folks
I have not blogged for a few days due to being very busy with extra trips to the hospital to see Nick as it is very hard to talk to him on the telephone with his mouth been as sore as it is.
He has had a rough couple of days and has not had much energy at all compared to my last blog when he was doing really well and hoping to come home for the weekend....right now he will be staying in but we take one day at a time and hope upon hope that I see some sign of improvement even if it's just a little bit of hope that I can cling onto. Today he is suffering a lot from headaches and he had a very disturbed night and is very agitated within himself....
I will blog later.....
I have not blogged for a few days due to being very busy with extra trips to the hospital to see Nick as it is very hard to talk to him on the telephone with his mouth been as sore as it is.
He has had a rough couple of days and has not had much energy at all compared to my last blog when he was doing really well and hoping to come home for the weekend....right now he will be staying in but we take one day at a time and hope upon hope that I see some sign of improvement even if it's just a little bit of hope that I can cling onto. Today he is suffering a lot from headaches and he had a very disturbed night and is very agitated within himself....
I will blog later.....
Tuesday 5 January 2010
A very snowy day
Hello all,
I've just got back from the hospital OUCH...my legs hurt from having to walk there in the snow but nothing compare to what my lovely hubby is going through so no more moaning from me ok maybe just one more little one OUCH!
He is much improved today and the doctors have received his blood culture results back and they now know what bug/infection they need to treat and have changed his antibiotics accordingly.
Some good news...if he keeps responding and improving well they are hoping to let him home for a few days at the weekend before they want him back in to start his next course of chemo. :-)
On that happy note I am off to have my evening meal then bed to watch the snow fall some more with my emergency hippo which gives out lots of cuddles that I received from Joanna my lovely friend.
Night Night all x
I've just got back from the hospital OUCH...my legs hurt from having to walk there in the snow but nothing compare to what my lovely hubby is going through so no more moaning from me ok maybe just one more little one OUCH!
He is much improved today and the doctors have received his blood culture results back and they now know what bug/infection they need to treat and have changed his antibiotics accordingly.
Some good news...if he keeps responding and improving well they are hoping to let him home for a few days at the weekend before they want him back in to start his next course of chemo. :-)
On that happy note I am off to have my evening meal then bed to watch the snow fall some more with my emergency hippo which gives out lots of cuddles that I received from Joanna my lovely friend.
Night Night all x
Monday 4 January 2010
Short message from Nick
Hi there,
Nick wanted to say a short message to you all on our new camera but I had to stop it early as he was finding it to difficult to talk but here is what he managed and as soon as he is better I will post another one up.
WARNING: It is distressing to see him like this he is not the Nick we all know and love but he will be back he just needs a little time to get over this infection that he has picked up and then he can get back on track with beating this tumor to a pulp. He had a very high temperature all day yesterday and is on two lots on antibiotics he is due his spinal chemo at 11.00 a.m. today.
Take care, will try and blog later.
Lynn x
Nick wanted to say a short message to you all on our new camera but I had to stop it early as he was finding it to difficult to talk but here is what he managed and as soon as he is better I will post another one up.
WARNING: It is distressing to see him like this he is not the Nick we all know and love but he will be back he just needs a little time to get over this infection that he has picked up and then he can get back on track with beating this tumor to a pulp. He had a very high temperature all day yesterday and is on two lots on antibiotics he is due his spinal chemo at 11.00 a.m. today.
Take care, will try and blog later.
Lynn x
Sunday 3 January 2010
Hi Guys
I was wondering if anyone would like to send Nick a message as he is very low at the moment to help cheer him up it does not have to be Get Wells...but any short messages or jokes that I can collate and read to him :)
Nick has been moved into a cubical today as he has a soring temperature and they have just started giving him two different antibiotics to try and help him pull through this infection he has. We are not sure what the infection is yet as the blood cultures have only just been sent off today.
Thanks
Lynn x
I was wondering if anyone would like to send Nick a message as he is very low at the moment to help cheer him up it does not have to be Get Wells...but any short messages or jokes that I can collate and read to him :)
Nick has been moved into a cubical today as he has a soring temperature and they have just started giving him two different antibiotics to try and help him pull through this infection he has. We are not sure what the infection is yet as the blood cultures have only just been sent off today.
Thanks
Lynn x
Saturday 2 January 2010
A very poorly hubby :(
Hello All,
The lovely Hey's came to visit today from Harrogate (it was great to see you guys and have that long awaited cuddle from Joanna) while they were here they looked after the boys for me while I visited Nick and took him an up to date photograph of Oscar and Isaac.
He is extremely poorly today....the nurses called a doctor out to see him at about 3.30 ish this morning...his 23 hr chemo that he had has caused him to have mouth, throat and gullet ulcers so he is now on two different mouth washes, a throat spray and a morphine based painkiller every hour as well as his anti-sickness injections. At the moment he is unable to eat even though he keeps trying....I took him some cartons of fruit today but he only managed about 4 small peach slices, I have never seen a throat so raw :(
Tonight they will also be starting injections into his stomach to help raise his immune system.
He is very very weak and has been drifting in and out of sleep most of the day. The nurses are missing his drawings today that he leaves on his pee bottles for them (they need to measure all that goes in and comes out) but hopefully very soon in the near future he will be able to put a smile back on there faces.
That's about it for today folks I am off to get myself something to eat as it's been none stop since breakfast!
But before I go I would like to thank Steve, Joanna and Ellie for the thoughtful gift that they have given us today....it's a digital camera so that I can film a message from the boys and take it to Nick so he can see it and then send one back to them when he is well enough to talk.
A VERY BIG THANK YOU to you from US ALL. XXXX
The lovely Hey's came to visit today from Harrogate (it was great to see you guys and have that long awaited cuddle from Joanna) while they were here they looked after the boys for me while I visited Nick and took him an up to date photograph of Oscar and Isaac.
He is extremely poorly today....the nurses called a doctor out to see him at about 3.30 ish this morning...his 23 hr chemo that he had has caused him to have mouth, throat and gullet ulcers so he is now on two different mouth washes, a throat spray and a morphine based painkiller every hour as well as his anti-sickness injections. At the moment he is unable to eat even though he keeps trying....I took him some cartons of fruit today but he only managed about 4 small peach slices, I have never seen a throat so raw :(
Tonight they will also be starting injections into his stomach to help raise his immune system.
He is very very weak and has been drifting in and out of sleep most of the day. The nurses are missing his drawings today that he leaves on his pee bottles for them (they need to measure all that goes in and comes out) but hopefully very soon in the near future he will be able to put a smile back on there faces.
That's about it for today folks I am off to get myself something to eat as it's been none stop since breakfast!
But before I go I would like to thank Steve, Joanna and Ellie for the thoughtful gift that they have given us today....it's a digital camera so that I can film a message from the boys and take it to Nick so he can see it and then send one back to them when he is well enough to talk.
A VERY BIG THANK YOU to you from US ALL. XXXX
Taking it's toll
Hello All,
I had an unplanned visit yesterday evening to see Nick he was not well....there are one or two infections starting to show even though he is in isolation i.e. urine infection and a really bad sore throat so as I left last night he was waiting for a doctor to come and see him.
It was the hardest visit yet for me last night, he was very weak and sleepy and could not hold much of a conversation and I must admit it really pulled on my heart strings to see him like that. He has coped so well with his treatment up until now (even to doctors and nurses keep commenting on how well he is dealing with the treatment) and now is the time that it all seams to have caught up with him.
I had a very restless night I am just hoping that Nick managed to get some rest I know that he was having his cocktail of IV drugs to see him through the night.
He is now also requiring more drugs every 6 hrs 24 hrs a day which counteracts the 23 hr IV that he had the other day and he is down for that until the 8th January or until his count recovers sufficiently enough.
We also got the results from the Liver scan eventually....after they have been chasing it up for over a week! All is well in that organ :) it is a group of blood vessels that have clumped together called a hemogoma and nothing to worry about.
A very big THANK YOU to Uncle Alan & Grace for sitting with the boys at such short notice yesterday and I am looking forward to seeing Joanna, Steve and Eleanor later today :)
That's all for now folks....I'll update the blog later once I have seen Nick today.
I had an unplanned visit yesterday evening to see Nick he was not well....there are one or two infections starting to show even though he is in isolation i.e. urine infection and a really bad sore throat so as I left last night he was waiting for a doctor to come and see him.
It was the hardest visit yet for me last night, he was very weak and sleepy and could not hold much of a conversation and I must admit it really pulled on my heart strings to see him like that. He has coped so well with his treatment up until now (even to doctors and nurses keep commenting on how well he is dealing with the treatment) and now is the time that it all seams to have caught up with him.
I had a very restless night I am just hoping that Nick managed to get some rest I know that he was having his cocktail of IV drugs to see him through the night.
He is now also requiring more drugs every 6 hrs 24 hrs a day which counteracts the 23 hr IV that he had the other day and he is down for that until the 8th January or until his count recovers sufficiently enough.
We also got the results from the Liver scan eventually....after they have been chasing it up for over a week! All is well in that organ :) it is a group of blood vessels that have clumped together called a hemogoma and nothing to worry about.
A very big THANK YOU to Uncle Alan & Grace for sitting with the boys at such short notice yesterday and I am looking forward to seeing Joanna, Steve and Eleanor later today :)
That's all for now folks....I'll update the blog later once I have seen Nick today.
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